The following links provide information, guidance and advice on living with Sickle Cell or Thalassemia. Please note however, that we cannot be held responsible for the accuracy and validity of the content of the websites. We would always advise that your seek medical and professional support wherever possible.
- Sickle Cell research is led by Professor Simon Dyson, Director of the Unit for the Social Study of Thalassaemia and Sickle Cell, in the faculty of Health and Life Sciences at De Montfort University in the United Kingdom.The unit has been working with a number of other experts across the country to carry out pioneering research into Sickle Cell and the issues faced by members of society.
- Through the years the Association has provided effective leadership in positioning sickle cell disease and its related problems as a major public health care concern and, indeed a universal problem.
- Since 1971, the Sickle Cell Foundation of Georgia, Inc. has stood as a bastion of hope for victims of Sickle Cell and other abnormal hemoglobin. Generous supporters, a dedicated staff, a dynamic Board, and caring volunteers make the Foundation and all of its programs and services possible.
- The Sickle Cell Disease Foundation of California (SCDFC) is the first and oldest non-profit, social service, sickle cell disease organization in the United States today. Founded in 1957, the Sickle Cell Disease Foundation of California has maintained a viable and reputable organization for over 50 years.We address the needs of individuals with sickle cell disease and their families by emphasizing educational and support programs and services that meet the physical, psycho social and economic needs of our clients.
- Thalassaemia International Federation (TIF) is a non-profit, non-governmental patient-driven organisation founded in 1986 and established in 1987. TIF is patient-driven organisation working in official relations with the World Health Organization (WHO) since 1996.
- The UK Forum on Haemoglobin Disorders is a multi-disciplinary group of health care professionals interested in all aspects of sickle cell disease, thalassaemia and related conditions.
- Bristol OSCAR was founded in 1984 to raise awareness of Sickle Cell and Thalassemia in Bristol and surrounding areas. The Bristol Sickle Cell & Thalassemia Centre was established in July 1991 as a base for counselling, information and educational resources on Sickle Cell & Thalassemia disorders.
- Ideal for All is a not for profit company and registered charity run by disabled people for disabled people in Sandwell. We provide a range of social and health care services for disabled people, carers and disadvantaged groups. Our aim is to help the people using our services to learn new skills and live as independently as possible.
- The Association of Sickle Cell sufferers of Yorkshire and Africa and Basic Information (ASYABI) was founded in Leeds in the United Kingdom in June 2008. It is aRegistered Charity led by volunteers and people affected by Sickle Cell Anaemia and Thalassaemia aiming to provide self-support and information, advice and other helps needed to people and their families affected by sickle cell and thalassaemia. Support and advice is provided by telephone, email and through home visits. ASYABI work with the support from Health Care professionals to ensure that individuals with sickle cell and thalassaemia get the optimum service from health, education or social care. Since 2009, our self-help patient group also known as “ASYABI”, has been able to provide conferences, leaflets, etc. on this issue to raise awareness of sickle cell disorder in Leeds and Yorkshire.
- The Sickle Cell Society supports and represents people affected by sickle cell disease to improve their overall quality of life.
- The Government White Paper – Saving Lives: Our Healthier Nation – set two major objectives: to improve the health of the population as a whole and to improve the health of the worst off in society.
- The Society is now engaged in raising the Health Education of the at risk Asian Communities of the U.K. and has itself launched an extensive Awareness Project spanning three years up to July 2000. This project is designed to arm the Asian Communities of the U.K. with the same knowledge of the disease and prevention that the Mediterranean Communities received in the 1970’s and the 1980’s. The project has been made possible by a grant from the National Lotteries Charities Board and follows years of lobbying many interested parties including the Department (Ministry) of Health and the Health Education Authority (Non-Governmental Organization) here in the U.K.
Whilst OSCAR Sandwell Ltd strives to keep this website up to date, it makes no warranties of any kind, either expressed or implied, about the completeness or accuracy of any of the information on the pages contained in this website.
OSCAR Sandwell Ltd provides links to other websites as a service to our website visitors, but we do not accept any responsibility for the content and suitability of these sites.
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Revised January 2017